My name is Josh Becker, I was diagnosed with bi-lateral hearing loss when I was 18 months old, and I received my first hearing aid when I was 2 years old. In 1988 at the age of 8, I was also diagnosed with idiopathic hypoparathyroidism. Even though my endorcrinologist had me on a regimen of diurectics to protect my kidneys, in the early 2000s, it was recommended that I see a urologist. It was then determined that I had nephrocalcinosis and kidney stones. I do not pass any of the kidney stones so they just sit in my kidneys making themselves at home. About two years ago, I went to Washington, DC, and visited the NIH. I received gene testing on a special case study that I was invited to participate in. That is when they determined I have a rare disease known as HDR Syndrome (hypoparathyroidism, deafness, and renal disease syndrome).